Our Vision
Our vision is to ESCAPE!
End Sickle Cell Across Planet Earth.
Our Mission
Though sickle cell disease (SCD) is the most devastating and deadly molecular disease, little is known about it. This is in part because it a rare disease and primarily affects people of African origin. Across much of of Africa, the most affected continent, even less is known about SCD and its manifestations are often shrouded in myth and superstition. In the West, it is seen as a “Black man’s disease” and for a long time it did not receive the attention it merits. With the realization that its impact goes beyond racial bounds, attitudes towards SCD have been changing, presenting the healthcare community a chance to address the inequities and biases pertaining to the care of persons with the condition.
Our mission is to raise awareness about sickle cell disease across the world and give vulnerable communities the will and resources to eradicate it.
Our process is honest and thoughtful, but respectful.
Sickle cell disease is a complicated debilitating and devastating condition and the conversations about it are not easy. At ESCAPE, we have believe avoiding them is simply slapping a bandaid over a festering wound. In discussions with members of vulnerable communities, we urge them to:
Know their sickle cell status
Know their intimate partner’s sickle cell status
Understand what it might mean for them to have their own children.
Understand the options:
>Adoption
>Fostering
>Co-parenting
>Mentoring
>Remaining childless
We strive to remain respectful or our clients perspectives and opinions. By having tough, honest conversations, we can all ESCAPE - End Sickle Cell Across Planet Earth.
Meet The ESCAPE Team
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Dr. Tsihugwa Kikuyu
Founder
Dr. Kikuyu founded ESCAPE because of his experience with sickle cell disease. With two daughters who have been seriously affected by the condition, he knows how it affects those afflicted with it and their families. Though much of his time was taken up with caregiving, clinic appointments, and hospital stays, Dr. Kikuyu has still been able to pursue his passion of teaching at all levels from high school to university. Over the years he has also held leadership positions in church and the community wherever he has lived. -
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Joseph Kamau
Director
Mr. Kamau also comes to ESCAPE with personal experience with the impact of medical conditions. He, therefore, has a desire to see families avoid pain and suffering as much as is possible. Approachable and driven by results, Mr. Kamau focuses on building strong relationships that help connect people to solutions. -
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Msimbi (SimSim) Kikuyu
Company Secretary and Administrative Assistant
A sickle cell warrior herself, Msimbi knows very well what it means to suffer the scourge of sickle cell disease. This has raised her level of empathy for anyone dealing with any sort of health condition. Her experience and love for working with children make her perfectly suited to ensuring each case brought for ESCAPE is addressed promptly and efficiently. -
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Karl Holland
CUSTOMER SERVICE MANAGER
Friendly, attentive, and always ready to help, our customer service manager ensures every interaction is a positive one. They keep communication clear, timely, and human.
